Is Everyone on the Same Team?

You really have to be your own advocate of your health and keep everyone on the same page or you will get lost in the shuffle, dont get me wrong I am sure that everyone means well but so many balls are dropped, I have an oncologist who has been away twice and her replacement who is doing his best my family doctor who is awesome but on her own little island as well.

We spent 6 hours at the cross last week because they were back logged from holidays...the worst thing is that noone tells you what is going on so you finally go up and check and were told we were next and why do we automatically assume that next could mean 5 minutes not another hour and a half!! I remember when Jay was born my doctor said you will have your baby before noon...well that was not something that should have ever been put in my head as he was born at 10:09 PM and it was a long gruelling day of Labour!!!!

Anyways finally got in and I have had breathing problems because I have blood clots or a pulminary embolism in my lungs they had been going away so that was good but the breathing problems have been getting worse, so he sent me for a chest X Ray to rule out pneumonia...no pneumonia and the cancer nodules that had appeared on my lungs look to be shrinking another positive sign!!

Next day was my CT Scan which is the grande Daddy of scans shows what is really going on as far as the success of your chemo...this test has turned out to be a thorn in my side and I now dread it I have had it about four times they put an intervenous in you and pump die through your veins to get a better reading of what is going on.....my veins are sensitive because of the blood clots...I really do have a high pain tolerence or I tell people I do  because I think I am pretty tough....lol any ways they open up the pressure to let this dye in your veins and I swear it feels like electric shock therapy........ I swear everytime.. F bombs,  to really get my point accross..this time I was on Chemo which really made me look tough.....one girl did it gentle one time opened it up at a decent pressure and it was all good, so it can be done....I was mad I said have you ever had this test done..no, actually I havnt.. well it feels like electric shock is running through your system and its all you can do from hurting somebody really badly...she's like hmm I will have to remember that...yes you will as I will not forget for next time...ok I know a little bitter...., I am generally more positive but I have my limits!!!!

So the CT Scan actually showed a return of my blood clots and likely the shortness of my breath a serious side affect on its own...so while we are all doing the happy dance over the chest X-ray it was a little premature...that is what I mean on everyone being on the same page, I have had shortness of breath for a month already!!!

Looks like we are back on track dosage was readjusted and hopefully the shortness of breath disappears soon :)